Access and equity

Review collection - Access and equity 

80 reviews

2024

Algu K, Wales J, Anderson M, Omilabu M, Briggs T, Kurahashi AM. Naming racism as a root cause of inequities in palliative care research: A scoping review. BMC Palliat Care. 2024;23(1):143.

Barnestein-Fonseca P, Nebro-Gil A, Aguiar-Leiva VP, Víbora-Martín E, Ruiz-Torreras I, Martín-Rosello ML, et al. Barriers and drivers of public engagement in palliative care, scoping review. BMC Palliat Care. 2024;23(1):1-17.

Bassah N, Beranek J, Kennedy M, Onabadejo J, Santos Salas A. Inequities in access to palliative and end-of-life care in the black population in canada: A scoping review. Int J Equity Health. 2024;23(1):81.

Coverdale MR, Murtagh F. Destitute and dying: Interventions and models of palliative and end of life care for homeless adults - a systematic review. BMJ Support Palliat Care. 2024.

Delamere T, Balfe J, Fraser LK, Sheaf G, Smith S. Defining and quantifying population-level need for children’s palliative care: Findings from a rapid scoping review. BMC Palliat Care. 2024;23(1):212.

Dixon KC, Ferris R, Kuhn I, Spathis A, Barclay S. Gypsy Traveller and Roma experiences, views and needs in palliative and end of life care: A systematic literature review and narrative synthesis. BMJ Support Palliat Care. 2024;14(e1):E58-E67.

Gilbert E, Viggiani ND, de Sousa Martins J, Palit T, Sears J, Knights D, et al. How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries. Palliative Medicine. 2024:02692163241242647.

Haroen H, Maulana S, Harlasgunawan A, Rahmawati S, Riansyah A, Musthofa F, et al. Barriers and facilitators of early palliative care in the trajectory of people living with chronic condition: A mini review using socio-ecological framework to inform public health strategy. J Multidiscip Healthc 2024;17:4189-97.

Hutchinson R, Impagliazzo C, Belin S, Chiu E, Shen AE, Razskazovskiy V, et al. How is Telehealth used to increase access to Specialty Palliative Care? A systematic review. J Pain Symptom Manage. 2024 May;67(5):e567. 

Sabrouty RE, Elouadi A, Karimoune MAS. Remote palliative care: A systematic review of effectiveness, accessibility, and patient satisfaction. IJACSA. 2024;15(5):502-13.

2023

Bassah N, Vaughn L, Santos Salas A. Nurse-led adult palliative care models in low- and middle-income countries: A scoping review. J Adv Nurs. 2023 Nov;79(11):4112-4126.

Butler H, Gott M, Prebble DK, Fortune DS, Robinson DJ. Palliative care research utilising intersectionality: A scoping review. BMC Palliat Care. 2023;22(1):1-16.

Collier A, Chapman M. Matters of care and the good death - rhetoric or reality? Curr Opin Support Palliat Care. 2023 Sep 1;17(3):208-213.

Heitner R, Rogers M, Chambers B, Pinotti R, Silvers A, Meier DE, Bowman B, Johnson KS. The experience of black patients with serious illness in the United States: A scoping review. J Pain Symptom Manage. 2023 Jul 11:S0885-3924(23)00579-1. doi: 10.1016/j.jpainsymman.2023.07.002. Epub ahead of print.

Iupati S, Stanley J, Egan R, MacLeod R, Davies C, Spence H, Iupati D, Middlemiss T, Gwynne-Robson I. Systematic Review of Models of Effective Community Specialist Palliative Care Services for Evidence of Improved Patient-Related Outcomes, Equity, Integration, and Health Service Utilization. J Palliat Med. 2023 May 25. doi: 10.1089/jpm.2022.0461. Epub ahead of print.

Jawed A, Comer AR. Disparities in end-of-life care for racial minorities: A narrative review. Ann Palliat Med. 2024 Mar;13(2):309-321.

Ly L, Pascoe A, Philip J, Hudson P, Smallwood N. Social determinants of advanced chronic respiratory interventions: A scoping review. Eur Respir Rev. 2023 Aug 23;32(169):230068.

Ooko F, Mothiba T, Van Bogaert P, Wens J. Access to palliative care in patients with advanced cancer of the uterine cervix in the low- and middle-income countries: A systematic review. BMC Palliat Care. 2023 Sep 20;22(1):140.

Pitzer S, Kutschar P, Paal P, Mülleder P, Lorenzl S, Wosko P, et al. Barriers for adult patients to access palliative care in hospitals: A mixed methods systematic review. J Pain Symptom Manage. 2023 Sep 17.

Plagg B, Ballmann J, Ewers M. Hospice and palliative care during disasters: A systematic review. Healthcare (Basel). 2023 Aug 24;11(17):2382.

Slusser K, Velasco RAF, Coats H. Patient, Caregiver, and Clinician Perceptions of Palliative Care that Influence Access and Use: A Qualitative Meta-Synthesis. Am J Hosp Palliat Care. 2023 Jun 22:10499091231185344. doi: 10.1177/10499091231185344. Epub ahead of print.

Xu X, Ho MH, Lin CC. Telehealth in palliative care during the covid-19 pandemic: A systematic mixed studies review. Worldviews Evid Based Nurs. 2023 Oct;20(5):476-491.

Zhang Y, Long W, Wang L, Yang L, Zhong J. Obstacles and Facilitating Factors in Decision-Making of Elderly Patients' Living Will in the Chinese Context-A Literature Review. Risk Manag Healthc Policy. 2022 Nov 23;15:2177-2186. doi: 10.2147/RMHP.S386488.

2022

Catlett L. Healthcare needs and assets of gender diverse older adults: A systematic integrative review. J Nurs Scholarsh. 2022 Sep 16. doi: 10.1111/jnu.12810. Epub ahead of print.

Chan S, Wilson DM, Santos Salas A. Examining the value and roles of palliative care nurse practitioners: A scoping review. Prog Palliat Care. 2022 Sep 19. doi: 10.1080/09699260.2022.2120725

Chand CP, Greenley S, Macleod U, Lind M, Barton R, Kelly C. Geographical distance and reduced access to palliative radiotherapy: systematic review and meta-analysis. BMJ Support Palliat Care. 2022 Mar 15:bmjspcare-2021-003356. doi: 10.1136/bmjspcare-2021-003356. Epub ahead of print.

Chuang E, Yu S, Georgia A, Nymeyer J, Williams J. A Decade of Studying Drivers of Disparities in End-of-Life Care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead. J Pain Symptom Manage. 2022 Apr 4:S0885-3924(22)00485-7. doi: 10.1016/j.jpainsymman.2022.03.017. Epub ahead of print.

Couchman E, Ejegi-Memeh S, Mitchell S, Gardiner C. Facilitators of and barriers to continuity with GPs in primary palliative cancer care: A mixed-methods systematic review. Prog Palliat Care. 2022 Jun 7. doi: 10.1080/09699260.2022.2074126.

Ebneter AS, Sauter TC, Christen A, Eychmueller S. Feasibility, acceptability and needs in telemedicine for palliative care. Swiss Med Wkly. 2022 Mar 9;152(9-10):Swiss Med Wkly. 2022;152:w30148. doi: 10.4414/smw.2022.w30148.

Effendy C, Yodang Y, Amalia S, Rochmawati E. Barriers and facilitators in the provision of palliative care in adult intensive care units: a scoping review. Acute Crit Care. 2022 Nov;37(4):516-526. doi: 10.4266/acc.2022.00745. Epub 2022 Oct 18.

Estrada L, Agarwal M, Stone P. Health Inequities in Nursing Home Palliative and End-of-Life Care: A Systematic Review. J Pain Symptom Manage. 2022 May;63(5):862-863. doi:10.1016/j.jpainsymman.2022.02.049.

Govind N, Ferguson C, Phillips JL, Hickman L. Palliative care interventions and end of life care as reported by patients' post-stroke and their families: a systematic review. Eur J Cardiovasc Nurs. 2022 Nov 29:zvac112. doi: 10.1093/eurjcn/zvac112. Epub ahead of print.

Kang JA, Barcelona V. A comparison of conceptual frameworks to examine health inequities in End-of-Life care. J Adv Nurs. 2022 Jul 31. doi: 10.1111/jan.15393. Epub ahead of print.

Kara M, Foster S, Cantrell K. Racial Disparities in the Provision of Pediatric Psychosocial End-of-Life Services: A Systematic Review. J Palliat Med. 2022 May 18. doi: 10.1089/jpm.2021.0476. Epub ahead of print.

Lintott L, Beringer R, Do A, Daudt H. A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians. Palliat Med. 2022 Feb 17:2692163221078475. doi: 10.1177/02692163221078475. Epub ahead of print.

Low C, Namasivayam P, Barnett T. Co-designing Community Out-of-hours Palliative Care Services: A systematic literature search and review. Palliat Med. 2022 Nov 9:2692163221132089. doi: 10.1177/02692163221132089. Epub ahead of print.

Mwase C, Nkhoma K, Allsop MJ. The role of digital health in palliative care for people living with HIV in sub-Saharan Africa: A systematic review. Digit Health. 2022 Nov 22;8:20552076221133707. doi: 10.1177/20552076221133707.

Namasivayam P, Bui DT, Low C, Barnett T, Bridgman H, Marsh P, Lee S. The use of telehealth in the provision of after-hours palliative care services in rural and remote Australia: A scoping review. PLoS One. 2022 Sep 26;17(9):e0274861. doi: 10.1371/journal.pone.0274861.

Racine L, Fowler-Kerry S, Aiyer H. Integrative review of the needs and challenges of indigenous palliative care in rural and remote settings. J Adv Nurs. 2022 Sep;78(9):2693-2712. doi: 10.1111/jan.15287. Epub 2022 May 16.

Saretta M, Doñate-Martínez A, Alhambra-Borrás T. Barriers and facilitators for an effective palliative care communication with older people: A systematic review. Patient Educ Couns. 2022 Apr 7:S0738-3991(22)00148-3. doi: 10.1016/j.pec.2022.04.003. Epub ahead of print.

Shabnam J, Timm HU, Nielsen DS, Raunkiaer M. Palliative Care Utilization Among Non-Western Migrants in Europe: A Systematic Review. J Immigr Minor Health. 2022 Feb;24(1):237-255. doi: 10.1007/s10903-021-01302-8. Epub 2021 Oct 28.

Wong AD, Phillips SP. Gender Disparities in End of Life Care: A Scoping Review. J Palliat Care. 2023 Jan;38(1):78-96. doi: 10.1177/08258597221120707. Epub 2022 Aug 22.

2021

Edwards D, Anstey S, Coffey M, Gill P, Mann M, Meudell A, Hannigan B. End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study). Palliat Med. 2021 Sep 3:2692163211037480. doi: 10.1177/02692163211037480. Epub ahead of print.

Edwards RL, Patrician PA, Bakitas M, Markaki A. Palliative care integration: a critical review of nurse migration effect in Jamaica. BMC Palliat Care. 2021 Oct 13;20(1):155. doi: 10.1186/s12904-021-00863-7.

French M, Keegan T, Anestis E, Preston N. Exploring socioeconomic inequities in access to palliative and end-of-life care in the UK: a narrative synthesis. BMC Palliat Care. 2021 Nov 21;20(1):179. doi: 10.1186/s12904-021-00878-0.

Jin S, Liu S, Li J, Ning X, Liu X. Stumbling and Growing: A Bibliometric Study of Academic Publications of Palliative Care in Mainland China for 2010-2020. J Palliat Care. 2021 Nov 8:8258597211039056. doi: 10.1177/08258597211039056. Epub ahead of print.

Jones T, Luth EA, Lin SY, Brody AA. Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review. J Pain Symptom Manage. 2021 Sep;62(3):e248-e260. doi: 10.1016/j.jpainsymman.2021.04.025. Epub 2021 May 11.

Mayland CR, Powell RA, Clarke GC, Ebenso B, Allsop MJ. Bereavement care for ethnic minority communities: A systematic review of access to, models of, outcomes from, and satisfaction with, service provision. PLoS One. 2021 Jun 30;16(6):e0252188. doi: 10.1371/journal.pone.0252188.

Nelson KE, Wright R, Peeler A, Brockie T, Davidson PM. Sociodemographic Disparities in Access to Hospice and Palliative Care: An Integrative Review. Am J Hosp Palliat Care. 2021 Jan 11:1049909120985419. doi: 10.1177/1049909120985419. Epub ahead of print.

Ogi M, Campling N, Birtwistle J, Richardson A, Bennett MI, Santer M, Latter S. Community access to palliative care medicines-patient and professional experience: systematic review and narrative synthesis. BMJ Support Palliat Care. 2021 Mar 28:bmjspcare-2020-002761. doi: 10.1136/bmjspcare-2020-002761. Epub ahead of print.

Sawyer JM, Higgs P, Porter JDH, Sampson EL. New public health approaches to palliative care, a brave new horizon or an impractical ideal? An Integrative literature review with thematic synthesis. Palliat Care Soc Pract. 2021 Oct 6;15:26323524211032984. doi: 10.1177/26323524211032984.

Tobin J, Rogers A, Winterburn I, Tullie S, Kalyanasundaram A, Kuhn I, Barclay S. Hospice care access inequalities: a systematic review and narrative synthesis. BMJ Support Palliat Care. 2021 Feb 19:bmjspcare-2020-002719. doi: 10.1136/bmjspcare-2020-002719. Epub ahead of print.

2020

Adam E, Sleeman KE, Brearley S, Hunt K, Tuffrey-Wijne I. The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review. Palliat Med. 2020 Jun 17:269216320932774. doi: 10.1177/0269216320932774. Epub ahead of print.

Aregay A, O'Connor M, Stow J, Ayers N, Lee S. Strategies used to establish palliative care in rural low- and middle-income countries: an integrative review. Health Policy Plan. 2020 Jun 24:czaa051. doi: 10.1093/heapol/czaa051. Epub ahead of print.

Greenfield K, Holley S, Schoth DE, Harrop E, Howard RF, Bayliss J, Brook L, Jassal SS, Johnson M, Wong I, Liossi C. A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life. Palliat Med. 2020 Mar 31:269216320907065. doi: 10.1177/0269216320907065. Epub ahead of print.

Jordan RI, Allsop MJ, ElMokhallalati Y, Jackson CE, Edwards HL, Chapman EJ, Deliens L, Bennett MI. Duration of palliative care before death in international routine practice: a systematic review and meta-analysis. BMC Med. 2020 Nov 26;18(1):368. doi: 10.1186/s12916-020-01829-x.

Luckett T, San Martin A, Currow DC, Johnson MJ, Barnes-Harris MM, Phillips JL. A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease. Palliat Med. 2020 Jul 28:269216320940153. doi: 10.1177/0269216320940153. Epub ahead of print.

Pawlow PC, Doherty CL, Blumenthal NP, Matura LA, Christie JD, Ersek M. An Integrative Review of the Role of Palliative Care in Lung Transplantation. Prog Transplant. 2020 Apr 3:1526924820913512. doi: 10.1177/1526924820913512. Epub ahead of print.

Sampedro Pilegaard M, Knold Rossau H, Lejsgaard E, Kjer Møller JJ, Jarlbaek L, Dalton SO, la Cour K. Rehabilitation and palliative care for socioeconomically disadvantaged patients with advanced cancer: a scoping review. Acta Oncol. 2020 Oct 6:1-12. doi: 10.1080/0284186X.2020.1827156. Epub ahead of print.

Yu CW, Alavinia SM, Alter DA. Impact of socioeconomic status on end-of-life costs: a systematic review and meta-analysis. BMC Palliat Care. 2020 Mar 23;19(1):35. doi: 10.1186/s12904-020-0538-y.

2019

Bindley K, Lewis J, Travaglia J, DiGiacomo M. Disadvantaged and disenfranchised in bereavement: A scoping review of social and structural inequity following expected death. Soc Sci Med. 2019 Dec;242:112599. doi: 10.1016/j.socscimed.2019.112599. Epub 2019 Oct 12.

Davies JM, Sleeman KE, Leniz J, Wilson R, Higginson IJ, Verne J, Maddocks M, Murtagh FEM. Socioeconomic position and use of healthcare in the last year of life: A systematic review and meta-analysis. PLoS Med. 2019 Apr 23;16(4):e1002782. doi: 10.1371/journal.pmed.1002782. eCollection 2019 Apr.

Fusi-Schmidhauser T, Riglietti A, Froggatt K, Preston N. Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review. COPD. 2019 Feb 4:1-12. doi: 10.1080/15412555.2019.1566893. [Epub ahead of print]

Lovell J, Pham T, Noaman SQ, Davis MC, Johnson M, Ibrahim JE. Self-management of heart failure in dementia and cognitive impairment: a systematic review. BMC Cardiovasc Disord. 2019 Apr 29;19(1):99. doi: 10.1186/s12872-019-1077-4.

Marmor M, Jonas A, Mirza A, Rad E, Wong H, Aslakson RA. Opportunities to Improve Utilization of Palliative Care Among Adults With Cystic Fibrosis: A Systematic Review. J Pain Symptom Manage. 2019 Dec;58(6):1100-1112.e1. doi: 10.1016/j.jpainsymman.2019.08.017. Epub 2019 Aug 19.

Neergaard MA, Brunoe AH, Skorstengaard MH, Nielsen MK. What socio-economic factors determine place of death for people with life-limiting illness? A systematic review and appraisal of methodological rigour. Palliat Med. 2019 Jun 12:269216319847089. doi: 10.1177/0269216319847089. [Epub ahead of print]

2018

Donkor A, Luckett T, Aranda S, Phillips J. Barriers and facilitators to implementation of cancer treatment and palliative care strategies in low- and middle-income countries: systematic review. Int J Public Health. 2018 Jul 5. doi: 10.1007/s00038-018-1142-2. [Epub ahead of print]

Elk R, Felder TM, Cayir E, Samuel CA. Social Inequalities in Palliative Care for Cancer Patients in the US: A Structured Review. Semin Oncol Nurs. 2018 Aug 23. pii: S0749-2081(18)30045-7. doi: 10.1016/j.soncn.2018.06.011. [Epub ahead of print]

Gardner DS, Doherty M, Bates G, Koplow A, Johnson S. Racial and Ethnic Disparities in Palliative Care: A Systematic Scoping Review. Families in Society. 2018 Dec;99(4):301-316. doi.org/10.1177/1044389418809083

Kim JW, Atkins C, Wilson AM. Barriers to specialist palliative care in interstitial lung disease: a systematic review. BMJ Support Palliat Care. 2018 Nov 21. pii: bmjspcare-2018-001575. doi: 10.1136/bmjspcare-2018-001575. [Epub ahead of print]

2016

Hudson BF, Flemming K, Shulman C, Candy B. Challenges to access and provision of palliative care for people who are homeless: a systematic review of qualitative research. BMC Palliat Care. 2016 Dec 3;15(1):96.

2012

Connolly A, Sampson EL, Purandare N. End-of-life care for people with dementia from ethnic minority groups: a systematic review. J Am Geriatr Soc. 2012 Feb;60(2):351-60.

Granda-Cameron C, Houldin A. Concept Analysis of Good Death in Terminally Ill Patients. Am J Hosp Palliat Care. 2012 Feb 23. [Epub ahead of print]

Rietjens JA, Deschepper R, Pasman R, Deliens L. Medical end-of-life decisions: does its use differ in vulnerable patient groups? A systematic review and meta-analysis. Soc Sci Med. 2012 Apr;74(8):1282-7. Epub 2012 Feb 17.

2011

Grams ME, Plantinga LC, Hedgeman E, Saran R, Myers GL, Williams DE, Powe NR; CDC CKD Surveillance Team. Validation of CKD and related conditions in existing data sets: A systematic review. Am J Kidney Dis. 2011 Jan;57(1):44-54. Epub 2010 Aug 6.

Lewis JM, DiGiacomo M, Currow DC, Davidson PM. Dying in the margins: understanding palliative care and socioeconomic deprivation in the developed world. J Pain Symptom Manage. 2011 Jul;42(1):105-18. Epub 2011 Mar 12.

Maddison AR, Asada Y, Urquhart R. Inequity in access to cancer care: a review of the Canadian literature. Cancer Causes Control. 2011 Mar;22(3):359-66. Epub 2011 Jan 8.

2007

Higginson IJ, Hart S, Koffman J, Selman L, Harding R. Needs assessments in palliative care: an appraisal of definitions and approaches used. J Pain Symptom Manage. 2007 May;33(5):500-5.

2006

Burt J, Raine R. The effect of age on referral to and use of specialist palliative care services in adult cancer patients: a systematic review. Age Ageing. 2006 Sep;35(5):469-76. Epub 2006 Jun 3.

2004

Ahmed N, Bestall JC, Ahmedzai SH, Payne SA, Clark D, Noble B. Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliat Med. 2004 Sep;18(6):525-42.