Intellectual Disability

Review collection - Intellectual disability

24 reviews

2024

Diaz MA, Bickenbach JE, Sabariego C, Bernard RM. Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying. J Appl Res Intellect Disabil. 2024;37(2):e13119.

Mair APA, Nimbley E, McConachie D, Goodall K, Gillespie-Smith K. Understanding the neurodiversity of grief: A systematic literature review of experiences of grief and loss in the context of neurodevelopmental disorders. Rev J Autism Dev Disord. 2024 Apr 3.

2023

Ashok N, Hughes D, Yardley S. Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography. Palliat Med. 2023 Jun 9:2692163231175928. doi: 10.1177/02692163231175928. Epub ahead of print.

2022

Coffey M, Edwards D, Anstey S, Gill P, Mann M, Meudell A, Hannigan B. End-of-life care for people with severe mental illness: mixed methods systematic review and thematic synthesis of published case studies (the MENLOC study). BMJ Open. 2022 Feb 22;12(2):e053223. doi: 10.1136/bmjopen-2021-053223.

O'Riordan D. Boland G, Guerin S, Dodd P. Synthesising existing research on complicated grief in intellectual disability: findings from a systematic review. J Intellect Disabil Res. 2022 Aug 30. doi: 10.1111/jir.12973.

2020

Adam E, Sleeman KE, Brearley S, Hunt K, Tuffrey-Wijne I. The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review. Palliat Med. 2020 Jun 17:269216320932774. doi: 10.1177/0269216320932774. Epub ahead of print.

Evans CJ, Yorganci E, Lewis P, Koffman J, Stone K, Tunnard I, Wee B, Bernal W, Hotopf M, Higginson IJ; MORECare_Capacity. Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement). BMC Med. 2020 Jul 22;18(1):221. doi: 10.1186/s12916-020-01654-2.

MacDonald S, Summers SJ. Psychosocial interventions for people with intellectual disabilities and dementia: A systematic review. J Appl Res Intellect Disabil. 2020 Feb 27. doi: 10.1111/jar.12722. Epub ahead of print.

Noorlandt HW, Echteld MA, Tuffrey-Wijne I, Festen DAM, Vrijmoeth C, van der Heide A, Korfage IJ. Shared decision-making with people with intellectual disabilities in the last phase of life: A scoping review. J Intellect Disabil Res. 2020 Sep 11. doi: 10.1111/jir.12774. Epub ahead of print.

2019

Dillane I, Doody O. Nursing people with intellectual disability and dementia experiencing pain: An integrative review. J Clin Nurs. 2019 Feb 20. doi: 10.1111/jocn.14834. [Epub ahead of print]

McKibben L, Brazil K, Hudson P, McLaughlin D. Informational needs of family caregivers of people with intellectual disability who require palliative care: a two-phase integrative review of the literature. Int J Palliat Nurs. 2019 Jan 2;25(1):4-18. doi: 10.12968/ijpn.2019.25.1.4.

Millard SK, de Knegt NC. Cancer Pain in People With Intellectual Disabilities: Systematic Review and Survey of Health Care Professionals. J Pain Symptom Manage. 2019 Jul 19. pii: S0885-3924(19)30386-0. doi: 10.1016/j.jpainsymman.2019.07.013. [Epub ahead of print]

2017

Fernández-Ávalos I, Fernández-Alcántara M, Cruz-Quintana F, Pérez-Marfil N. Assessment of the grieving processes in people with intellectual disabilities: A systematic review. Estud Psicol. 2017 Jun;38(3):779-87.

Voss H, Vogel A, Wagemans AMA, Francke AL, Metsemakers JFM, Courtens AM, de Veer AJE. Advance Care Planning in Palliative Care for People With Intellectual Disabilities: A Systematic Review. J Pain Symptom Manage. 2017 Aug 8. pii: S0885-3924(17)30347-0. doi: 10.1016/j.jpainsymman.2017.04.016. [Epub ahead of print]

2016

Zaal-Schuller IH, de Vos MA, Ewals FV, van Goudoever JB, Willems DL. End-of-life decision-making for children with severe developmental disabilities: The parental perspective. Res Dev Disabil.2016 Feb-Mar;49-50:235-46.Epub 2015 Dec 29.

2014

Dunkley S, Sales R. The challenges of providing palliative care for people with intellectual disabilities: a literature review. Int J Palliat Nurs. 2014 Jun;20(6):279-84.

2013

Clarke G, Harrison K, Holland A, Kuhn I, Barclay S. How are treatment decisions made about artificial nutrition for individuals at risk of lacking capacity? A systematic literature review. PLoS One. 2013 Apr 16;8(4):e61475.

de Knegt NC, Pieper MJ, Lobbezoo F, Schuengel C, Evenhuis HM, Passchier J, Scherder EJ. Behavioral pain indicators in people with intellectual disabilities: a systematic review. J Pain. 2013 Sep;14(9):885-96. Epub 2013 Jul 3.

2012

Friedman SL, Helm DT, Woodman AC. Unique and universal barriers: hospice care for aging adults with intellectual disability. Am J Intellect Dev Disabil. 2012 Nov;117(6):509-32.

2011

Wigham S, Hatton C, Taylor JL. The effects of traumatizing life events on people with intellectual disabilities: A systematic review. Journal of Mental Health Research in Intellectual Disabilities. 2011 Jan;4(1):19-39.

2008

Reilly DE, Hastings RP, Vaughan FL, Huws JC. Parental bereavement and the loss of a child with intellectual disabilities: a review of the literature. Intellect Dev Disabil. 2008 Feb;46(1):27-43.

2007

Tuffrey-Wijne I, Hogg J, Curfs L. End-of-Life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources. J Appl Res Intellect Disabil. 2007 Jul;20(4):331-344.

2005

Dodd P, Dowling S, Hollins S. A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. J Intellect Disabil Res. 2005 Jul;49(Pt 7):537-43.

2003

Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: a literature review. Palliat Med. 2003 Jan;17(1):55-62.