Paediatrics

2024

Adistie F, Neilson S, Shaw KL, Bay B, Efstathiou N. The elements of end-of-life care provision in paediatric intensive care units: A systematic integrative review. BMC Palliat Care. 2024;23(1):184.

Athanasiou K, Vasilopoulos G, Kelesi-Stavropoulou M, Pilikandrioti M, Dousis E. Exploring bereavement in pediatric nursing: A systematic review (443kb pdf). Int J Caring Sci. 2024;17(1):481-491.

Benini F, Brogelli L, Mercante A, Giacomelli L. Transition to adulthood in pediatric palliative care: A narrative review. Children [Internet]. 2024; 11(7).

Blackburn J, Waring G, Turner M, Currell K, Caress AL. Exploring the impact of bereavement during the covid-19 pandemic on children and young people: A scoping review. Compr Child Adolesc Nurs. 2024;47(1):55-67.

Cress AE. Psychiatry and interdisciplinary pediatric palliative care: A scoping review. Ann Palliat Med. 2024 Mar;13(2):415-427.

Davis G, Gaskin K, Molnár G, Bentley J. Places of farewell: A scoping review exploring factors influencing the choice of place of death for children when death is expected. Comprehensive Child and Adolescent Nursing. 2024;47(3):151-69.

De Clercq E, Vokinger AK, Pedraza EC, von Bueren AO, Tinner EM, Michel G. Cooling facilities in paediatric palliative care: A ritual form of mourning? A scoping literature review. Mortality. 2024:1-19.

Delamere T, Balfe J, Fraser LK, Sheaf G, Smith S. Defining and quantifying population-level need for children’s palliative care: Findings from a rapid scoping review. BMC Palliat Care. 2024;23(1):212.

González-Biber M, Rueda-Extremera M, Gomez-Martínez S, Cantero-García M. Protective factors associated with the loss of a child due to oncological illness: Systematic review. Omega (Westport). 2024:302228241272500.

Hanauer C, Telaar B, Rosner R, Doering BK. The efficacy of psychosocial interventions for grief symptoms in bereaved children and adolescents: A systematic review and meta-analysis. J Affect Disord. 2024 Jan 11.

IJacob Z, Plumb L, Oni L, Mitra S, Reynolds B. A systematic review of symptoms experienced by children and young people with kidney failure. Pediatr Nephrol. 2024.

luno AC, Tatterton MJ, Haith-Cooper M. Meta-synthesis of ethnic minority families’ experiences of children’s palliative care across developed countries. Palliat Support Care. 2024 Apr 24:1-14.

Kammin V, Fraser L, Flemming K, Hackett J. Experiences of music therapy in paediatric palliative care from multiple stakeholder perspectives: A systematic review and qualitative evidence synthesis. Palliat Med. 2024 Mar; 38(3):264-378.

Ng GMC, Bourassa M-H, Patel H. How do children with medical complexity die? A scoping review. J Palliat Med. 2024 Jan 29.

Pedraza EC, Vokinger AK, Cleves D, Michel G, Wrigley J, Baker JN, et al. Grief and bereavement support for parents in low- or middle-income countries: A systematic review. J Pain Symptom Manage. 2024 Jan 18.

Qualls KA, Svynarenko R, Cozad MJ, Keim-Malpass J, Huang G, Lindley LC. Geographic information systems utilization in pediatric end-of-life research: A scoping review. Am J Hosp Palliat Care. 2024;41(2):216-227.

Riera-Negre L, Rosselló MR, Verger S. Enhancing quality of life in pediatric palliative care: Insights, challenges, and future directions—a systematic review. Health Socl Care Community. 2024 Apr 23;2024:1-14.

Saladino V, Verrastro V, Calaresi D, Barberis N. The effectiveness of cognitive behavioral therapy for prolonged grief symptoms in children and adolescents: A systematic review. Int J Stress Manage. 2024;3(1):66-85.

Schröder J, Riiser K, Holmen H. The needs of healthcare personnel who provide home-based pediatric palliative care: A mixed method systematic review. BMC Health Serv Res. 2024;24(1):45.

Silverstein A, Easton V, Barrows C, Sawyer K, Coughlin R, Mali N, et al. Dignity in the pediatric population: A systematic review. J Pain Symptom Manage. 2024.

Tafazoli A, Cronin-Wood K. Pediatric oncology hospice: A comprehensive review. Am J Hosp Palliat Care. 2024:10499091241227609. 

Tan WL, Sambhi SK, Shorey S. Experiences of paediatric terminal oncology patients and their parents in palliative care: A qualitative systematic review. J Pediatr Nurs. 2024.

Ting J, Songer K, Bailey V, Rotman C, Lipsitz S, Rosenberg AR, et al. Impact of subspecialty pediatric palliative care on children with heart disease: A systematic review and meta-analysis. Pediatr Cardiol. 2024.

2023

Agrawal US, Sarin J, Bakhshi S, Garg R. Challenges and opportunities in providing palliative care services to children with a life-limiting illness: A systematic review. Natl Med J India. 2023 Sep-Oct;35(5):284-289. doi: 10.25259/NMJI_349_2022.

Bernier Carney KM, Goodrich G, Lao A, Tan Z, Kiza AH, Cong X, Hinderer KA. Palliative care referral criteria and application in pediatric illness care: A scoping review. Palliat Med. 2023 Mar 27:2692163231163258. doi: 10.1177/02692163231163258. Epub ahead of print.

Blume ED, Kirsch R, Cousino MK, Walter JK, Steiner JM, Miller TA, Machado D, Peyton C, Bacha E, Morell E; American Heart Association Pediatric Heart Failure and Transplantation Committee of the Council on Lifelong Congenital Heart Disease and Heart Health in the Young. Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2023 Jan 12:e000114. doi: 10.1161/HCQ.0000000000000114. Epub ahead of print.

Crooks J, Flemming K, Shulman C, Hudson B. Opportunities and challenges in involving people with lived experience of inclusion health as co-researchers in palliative and end of life research: a rapid review and thematic synthesis. Res Involv Engagem. 2023 Apr 20;9(1):25. doi: 10.1186/s40900-023-00436-3.

Danielson K, Colman H. Supporting Children Through Grief: A Content Analysis of Picturebooks About Death. Early Childhood Educ J. 2023 Jun 27. doi: 10.1007/s10643-023-01529-0.

Engel M, Brouwer MA, Jansen N, Leget C, Teunissen SC, Kars MC. The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review. Palliat Med. 2023 Jul 17:2692163231186173. doi: 10.1177/02692163231186173. Epub ahead of print.

Hammer NM, Bidstrup PE, Brok J, Devantier M, Sjøgren P, Schmiegelow K, Larsen A, Kurita GP, Olsen M, Larsen HB. Home-Based Specialized Pediatric Palliative Care: A Systematic Review and Meta-Analysis. J Pain Symptom Manage. 2023 Jan 5:S0885-3924(22)01047-8. doi: 10.1016/j.jpainsymman.2022.12.139. Epub ahead of print.

Hirata M, Kobayashi K. Experiences with the end-of-life decision-making process in children with cancer, their parents, and healthcare professionals: A systematic review and meta-ethnography. J Pediatr Nurs. 2022 Dec 29:S0882-5963(22)00319-0. doi: 10.1016/j.pedn.2022.12.004. Epub ahead of print.

Kenneson SA, Hughes-Visentin A, Wrigley J, Gujral P, Lodhi S, Phadke S, Rayala S, Gentica X, Malipeddi D, Sarvode S, Kaye EC, Doherty M. Pediatric Palliative Care Program Implementation in LMICs: A Systematic Review using SWOT Analysis. J Pain Symptom Manage. 2023 Jul 4:S0885-3924(23)00577-8. doi: 10.1016/j.jpainsymman.2023.06.032. Epub ahead of print.

Lakhani J, Mack C, Kunyk D, Kung J, van Manen M. Considerations for Practice in Supporting Parental Bereavement in the Neonatal Intensive Care Unit-a Systematic Review. J Palliat Care. 2023 Feb 27:8258597231158328. doi: 10.1177/08258597231158328. Epub ahead of print.

Lamb CM, Ramer K, Amodu O, Groenenboom K. The meaning of dying and death for children, their carers, and families: A scoping review. BMC Palliat Care. 2023;22(1):1-15.

Lee ARYB, Yau CE, Low CE, Li J, Ho RCM, Ho CSH. Severity and Longitudinal Course of Depression, Anxiety and Post-Traumatic Stress in Paediatric and Young Adult Cancer Patients: A Systematic Review and Meta-Analysis. J Clin Med. 2023 Feb 23;12(5):1784. doi: 10.3390/jcm12051784.

Lusney N, van Breemen C, Lim E, Pawliuk C, Hussein Z. Pediatric advance care planning: A scoping review. Children (Basel). 2023 Jul 7;10(7):1179. doi: 10.3390/children10071179.

Motlagh EG, Bakhshi M, Davoudi N, Ghasemi A, Moonaghi HK. The physical and psychological outcomes of art therapy in pediatric palliative care: A systematic review. J Res Med Sci. 2023 Mar 16;28:13. doi: 10.4103/jrms.jrms_268_22.

Mukherjee S, Richardson N, Beresford B. Hospital healthcare experiences of children and young people with life-threatening or life-shortening conditions, and their parents: scoping reviews and resultant conceptual frameworks. BMC Pediatr. 2023 Jul 17;23(1):366. doi: 10.1186/s12887-023-04151-6.

Neefjes V. Parental ethical decision making and implications for advance care planning: A systematic review and secondary analysis of qualitative literature from England and Wales, Germany, and the Netherlands. J Palliat Med. 2023;26(12):1728-1743.

Polakova K, Ahmed F, Vlckova K, Brearley SG. Parents' experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis. Palliat Med. 2023:2692163231214414.

Rajendran P, Jarasiunaite-Fedosejeva G, İsbir GG, Shorey S. Healthy siblings' perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis. Palliat Med. 2023:2692163231217597.

Ruiz-Gil T, Ródenas-Rigla F. Quality of care in pediatric palliative care: A scoping review. Children (Basel). 2023; 10(12).

Silveira AO, Wernet M, Franco LF, Dias PLM, Charepe Z. Parents' hope in perinatal and neonatal palliative care: A scoping review. BMC Palliat Care. 2023;22(1):1-11.

Sjuls M, Ludvigsen MS, Robstad N, Fegran L. Fathers' experiences of living with a child with a progressive life-limiting condition without curative treatment options: A qualitative systematic review. J Adv Nurs. 2023 Sep 26.

Wong JQH, Charles JS, Mok HT, Tan TSZ, Amin Z, Ng YPM. Experiences of healthcare personnel with death in the neonatal intensive care unit: a systematic review of qualitative studies. Arch Dis Child Fetal Neonatal Ed. 2023 May 17:fetalneonatal-2023-325566. doi: 10.1136/archdischild-2023-325566. Epub ahead of print.

Zhong Y, Cavolo A, Labarque V, Gastmans C. Physicians' attitudes and experiences about withholding/withdrawing life-sustaining treatments in pediatrics: a systematic review of quantitative evidence. BMC Palliat Care. 2023 Sep 29;22(1):145.

2022

Abdelaal M, Avery J, Chow R, Saleem N, Fazelzad R, Mosher P, Hannon B, Zimmermann C, Al-Awamer A. Palliative care for adolescents and young adults with advanced illness: A scoping review. Palliat Med. 2022 Nov 9:2692163221136160. doi: 10.1177/02692163221136160. Epub ahead of print.

Barrett L, Fraser L, Noyes J, Taylor J, Hackett J. Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis. Palliat Med. 2023 Feb;37(2):178-202. doi: 10.1177/02692163221144084. Epub 2022 Dec 22.

Benedetti F, Zoletto S, Salerno A, Avagnina I, Benini F. Old Drug, New Pain. Roles and Challenges of Methadone Therapy in Pediatric Palliative Care: A Systematic Review. Front Pediatr. 2022 May 27;10:874529. doi: 10.3389/fped.2022.874529.

Bennett HE, Duke S, Richardson A. Paediatric advance care planning in life-limiting conditions: scoping review of parent experiences. BMJ Support Palliat Care. 2022 Jun 3. doi: 10.1136/bmjspcare-2022-003544.

Brunetta J, Fahner J, Legemaat M, van den Bergh E, Krommenhoek K, Prinsze K, Kars M, Michiels E. Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review. Children (Basel). 2022 Jun 3;9(6):830. doi: 10.3390/children9060830.

Chan AY, Ge M, Harrop E, Johnson M, Oulton K, Skene SS, Wong IC, Jamieson L, Howard RF, Liossi C. Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice. Palliat Med. 2022 Jan;36(1):30-43. doi: 10.1177/02692163211049309. Epub 2021 Dec 29.

Dorman J, Raffin Bouchal S, daSilva Curiel K, Miller M. Family experiences with palliative care in freestanding paediatric hospices: a scoping review. BMJ Support Palliat Care. 2022 Jun 1:bmjspcare-2021-003457. doi: 10.1136/bmjspcare-2021-003457. Epub ahead of print.

Flach K, Gressler NG, Marcolino MAZ, Levandowski DC. Complicated Grief After the Loss of a Baby: A Systematic Review About Risk and Protective Factors for Bereaved Women. Trends in Psychol. 2022 Jan 10. doi: 10.1007/s43076-021-00112-z

Hamel MN, Beltran SJ. Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review. Am J Hosp Palliat Care. 2022 Jul 6:10499091221113277. doi: 10.1177/10499091221113277. Epub ahead of print.

Jessop M, Fischer A, Good P. Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature. Palliat Med. 2022 May 5:2692163221092618. doi: 10.1177/02692163221092618. Epub ahead of print.

Kara M, Foster S, Cantrell K. Racial Disparities in the Provision of Pediatric Psychosocial End-of-Life Services: A Systematic Review. J Palliat Med. 2022 May 18. doi: 10.1089/jpm.2021.0476. Epub ahead of print.

Lo DS, Hein N, Bulgareli JV. Pediatric palliative care and end-of-life: a systematic review of economic health analyses. Rev Paul Pediatr. 2022 Jan 5;40:e2021002. doi: 10.1590/1984-0462/2022/40/2021002.

Maniago JD, Ngaya-An FV. Implementation Science of Paediatric Palliative Care in Lower-Middle-Income Countries in Southeast Asia: An Integrative Review. Indian J Palliat Care. 2022 Jan-Mar;28(1):80-87. doi: 10.25259/IJPC_410_20. Epub 2022 Mar 3.

Mayland CR, Sunderland KA, Cooper M, Taylor P, Powell PA, Zeigler L, Cox V, Gilman C, Turner N, Flemming K, Fraser LK. Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools. Palliat Med. 2022 Aug 1:2692163221105599. doi: 10.1177/02692163221105599. Epub ahead of print.

Noyes M, Herbert A, Moloney S, Irving H, Bradford N. Location of end-of-life care of children with cancer: A systematic review of parent experiences. Pediatr Blood Cancer. 2022 Jun;69(6):e29621. doi: 10.1002/pbc.29621. Epub 2022 Mar 16.

Saad R, Abu-Saad Huijer H, Noureddine S, Sailian SD. Pediatric palliative care through the eyes of healthcare professionals, parents and communities: a narrative review. Ann Palliat Med. 2022 Oct;11(10):3292-3314. doi: 10.21037/apm-22-525. Epub 2022 Oct 17.

Shorey S, Chua C. Nurses and nursing students' experiences on pediatric end-of-life care and death: A qualitative systematic review. Nurse Educ Today. 2022 Mar 18;112:105332. doi: 10.1016/j.nedt.2022.105332. Epub ahead of print.

Srivastava R, Srivastava S. Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method. Indian J Palliat Care. 2022 Apr-Jun;28(2):199-215. doi: 10.25259/IJPC_37_2021. Epub 2022 Mar 3.

St Louis JR, Pesut B, Zhao R. Best practices for educating NICU nurses about palliative care: A rapid review. J Neonatal Nurs. 2022;28(1):3-8. doi: 10.1016/j.jnn.2021.08.007.

Stone W, Keim-Malpass J, Cozad MJ, Fornehed MLC, Lindley LC. Pediatric End-of-Life Care in Rural America: A Systematic Review. Am J Hosp Palliat Care. 2022 Sep;39(9):1098-1104. doi: 10.1177/10499091211064202. Epub 2021 Dec 28.

van Kempen MM, Kochen EM, Kars MC. Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review. Acta Paediatr. 2022 Jan 7. doi: 10.1111/apa.16248. Epub ahead of print.

Zhong Y, Cavolo A, Labarque V, Gastmans C. Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence. BMC Palliat Care. 2022 Jun 24;21(1):113. doi: 10.1186/s12904-022-01003-5.

2021

Archer S, Cheung NHY, Williams I, Darzi A. The impact of digital health interventions on the psychological outcomes of patients and families receiving paediatric palliative care: A systematic review and narrative synthesis. Palliat Med. 2021 Jun 23:2692163211026523. doi: 10.1177/02692163211026523. Epub ahead of print.

Battista V, Baker DJ, Trimarchi T, Sabri B, Wright R, D'Aoust RF. Advance Directives for Adolescents and Young Adults Living With Neuromuscular Disease: An Integrative Review of the Literature. J Hosp Palliat Nurs. 2021 Oct 1;23(5):492-498. doi: 10.1097/NJH.0000000000000786.

Beltran SJ, Hamel MN. Caring for Dying Infants: A Systematic Review of Healthcare Providers' Perspectives of Neonatal Palliative Care. Am J Hosp Palliat Care. 2021 Aug;38(8):1013-1027. doi: 10.1177/1049909120965949. Epub 2020 Oct 15.

Clabburn O, Knighting K, Jack BA, O'Brien MR. Continuing Bonds With Children and Bereaved Young People: A Narrative Review. Omega (Westport). 2021 Aug;83(3):371-389. doi: 10.1177/0030222819853195. Epub 2019 Jun 5.

Dos Anjos C, Silva RMCRA, Pereira ER, Sampaio CEP, Silva MA, Carneiro ECDSP. Families experiencing palliative care for hospitalized children with cancer: an integrative review. Revista Enfermagem. 2021;29. doi: 10.12957/reuerj.2021.51932.

Fisher V, Fraser L, Taylor J. Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis. BMJ Support Palliat Care. 2021 Jun 17:bmjspcare-2021-003019. doi: 10.1136/bmjspcare-2021-003019. Epub ahead of print.

Hartley J, Bluebond-Langner M, Candy B, Downie J, Henderson EM. The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review. Pediatrics. 2021 Jun 21:e2020014423. doi: 10.1542/peds.2020-014423. Epub ahead of print.

Hasan F, Widger K, Sung L, Wheaton L. End-of-Life Childhood Cancer Research: A Systematic Review. Pediatrics. 2021 Mar;147(3):e2020003780. doi: 10.1542/peds.2020-003780.

Haylett WJ, Tilley DS. The Phenomenon of Bereaved Parenting: An Integrative Review of Literature. Omega (Westport). 2021 Feb;82(3):424-445. doi: 10.1177/0030222818819350. Epub 2018 Dec 18.

Juárez-Villegas LE, Altamirano-Bustamante MM, Zapata-Tarrés MM. Decision-Making at End-of-Life for Children With Cancer: A Systematic Review and Meta-Bioethical Analysis. Front Oncol. 2021 Oct 15;11:739092. doi: 10.3389/fonc.2021.739092.

Kaye EC, Weaver MS, DeWitt LH, Byers E, Stevens SE, Lukowski J, Shih B, Zalud K, Applegarth J, Wong HN, Baker JN, Ullrich CK; AAHPM Research Committee. The Impact of Specialty Palliative Care in Pediatric Oncology: A Systematic Review. J Pain Symptom Manage. 2021 May;61(5):1060-1079.e2. doi: 10.1016/j.jpainsymman.2020.12.003. Epub 2020 Dec 24.

Laurentius A, Wiyono L, Subali AD, Siagian SN. Evaluation of Right Ventricular Outflow Tract Stenting as Palliative Treatment in Severely Cyanotic Tetralogy of Fallot: A Systematic Review and Meta-analysis of Observational Studies. J Tehran Univ Heart Cent. 2021; 16(4): 135-146. doi: 10.18502/jthc.v16i4.8599.

Lin SC, Huang MC, Yasmara D, Wuu HL. Impact of palliative care on end-of-life care and place of death in children, adolescents, and young adults with life-limiting conditions: A systematic review. Palliat Support Care. 2021 Aug;19(4):488-500. doi: 10.1017/S1478951520001455.

Lopes-Júnior LC, Urbano IR, Schuab SIPC, Pessanha RM, Rosa GS, Lima RAG. Effectiveness of complementary therapies for the management of symptom clusters in palliative care in pediatric oncology: a systematic review. Rev Esc Enferm USP. 2021 May 19;55:03709. English, Portuguese. doi: 10.1590/S1980-220X2020025103709.

McNeil MJ, Baker JN, Snyder I, Rosenberg AR, Kaye EC. Grief and Bereavement in Fathers After the Death of a Child: A Systematic Review. Pediatrics. 2021 Mar 1:e2020040386. doi: 10.1542/peds.2020-040386. Epub ahead of print.

Mole SE, Schulz A, Badoe E, Berkovic SF, de Los Reyes EC, Dulz S, Gissen P, Guelbert N, Lourenco CM, Mason HL, Mink JW, Murphy N, Nickel M, Olaya JE, Scarpa M, Scheffer IE, Simonati A, Specchio N, Von Löbbecke I, Wang RY, Williams RE. Guidelines on the diagnosis, clinical assessments, treatment and management for CLN2 disease patients. Orphanet J Rare Dis. 2021 Apr 21;16(1):185. doi: 10.1186/s13023-021-01813-5.

Moynihan KM, Dorste A, Siegel BD, Rabinowitz EJ, McReynolds A, October TW. Decision-Making, Ethics, and End-of-Life Care in Pediatric Extracorporeal Membrane Oxygenation: A Comprehensive Narrative Review. Pediatr Crit Care Med. 2021 May 17. doi: 10.1097/PCC.0000000000002766. Epub ahead of print.

Ngiam LXL, Ong YT, Ng JX, Kuek JTY, Chia JL, Chan NPX, Ho CY, Abdurrahman ABHM, Kamal NHA, Cheong CWS, Ng CH, Tan XH, Tan LHE, Chin AMC, Mason S, Jumat MR, Chiam M, Krishna LKR. Impact of Caring for Terminally Ill Children on Physicians: A Systematic Scoping Review. Am J Hosp Palliat Care. 2021 Apr;38(4):396-418. doi: 10.1177/1049909120950301. Epub 2020 Aug 20.

Oakley S, Dunbar H, de Vries K. Parent-led strategies supporting personal well-being when caring for a child with a life-limiting condition: A scoping review. J Child Health Care. 2021 Aug 9:13674935211026122. doi: 10.1177/13674935211026122. Epub ahead of print.

Ortiz-Campoy S, Lirio-Romero C, Romay-Barrero H, Álvarez DM, López-Muñoz P, Palomo-Carrión R. The Role of Physiotherapy in Pediatric Palliative Care: A Systematic Review. Children (Basel). 2021 Nov 12;8(11):1043. doi: 10.3390/children8111043.

Piette V, Beernaert K, Cohen J, Pauwels NS, Scherrens AL, van der Werff Ten Bosch J, Deliens L. Healthcare interventions improving and reducing quality of life in children at the end of life: a systematic review. Pediatr Res. 2021 Apr;89(5):1065-1077. doi: 10.1038/s41390-020-1036-x. Epub 2020 Jul 9.

Tan AJN, Tiew LH, Shorey S. Experiences and needs of parents of palliative paediatric oncology patients: A meta-synthesis. Eur J Cancer Care (Engl). 2021 May;30(3):e13388. doi: 10.1111/ecc.13388. Epub 2020 Dec 17.

Tezuka S, Kobayashi K. Parental experience of child death in the paediatric intensive care unit: a scoping review. BMJ Open. 2021 Dec 30;11(12):e057489. doi: 10.1136/bmjopen-2021-057489.

Vig PS, Lim JY, Lee RWL, Huang H, Tan XH, Lim WQ, Lim MBXY, Lee ASI, Chiam M, Lim C, Baral VR, Krishna LKR. Parental bereavement - impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review. BMC Palliat Care. 2021 Sep 4;20(1):136. doi: 10.1186/s12904-021-00831-1.

Young K, Bowers A, Bradford N. Families' experiences of child and adolescent brain tumor: A systematic review and synthesis of qualitative research. Psychooncology. 2021 Jun 8. doi: 10.1002/pon.5745. Epub ahead of print.

2020

Atout M. Experience of nurses who work with children with palliative care needs: A mixed-method systematic review. Palliat Support Care. 2020 Aug;18(4):473-485. doi: 10.1017/S1478951519000956.

Beavis J, Davis L, McKenzie S. Clinical Supervision for Support Workers in Paediatric Palliative Care: A Literature Review. Clin Child Psychol Psychiatry. 2020 Oct 14:1359104520961431. doi: 10.1177/1359104520961431. Epub ahead of print.

Beltran SJ, Hamel MN. Caring for Dying Infants: A Systematic Review of Healthcare Providers' Perspectives of Neonatal Palliative Care. Am J Hosp Palliat Care. 2020 Oct 15:1049909120965949. doi: 10.1177/1049909120965949. Epub ahead of print.

Bradford N, Rolfe M, Ekberg S, Mitchell G, Beane T, Ferranti K, Herbert A. Family meetings in paediatric palliative care: an integrative review. BMJ Support Palliat Care. 2020 Jul 17:bmjspcare-2020-002333. doi: 10.1136/bmjspcare-2020-002333. Epub ahead of print.

Carr K, Hasson F, McIlfatrick S, Downing J. Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review. Palliat Med. 2020 Dec 29:269216320983197. doi: 10.1177/0269216320983197. Epub ahead of print.

Eche IJ, Eche IM, Aronowitz T. An Integrative Review of Factors Associated With Symptom Burden at the End of Life in Children With Cancer. J Pediatr Oncol Nurs. 2020 Mar 10:1043454220909805. doi: 10.1177/1043454220909805. Epub ahead of print.

Greenfield K, Holley S, Schoth DE, Harrop E, Howard RF, Bayliss J, Brook L, Jassal SS, Johnson M, Wong I, Liossi C. A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life. Palliat Med. 2020 Mar 31:269216320907065. doi: 10.1177/0269216320907065. Epub ahead of print.

Johnston EE, Martinez I, Currie E, Brock KE, Wolfe J. Hospital or Home? Where Should Children Die and How Do We Make That a Reality? J Pain Symptom Manage. 2019 Dec 28:S0885-3924(19)31084-X. doi: 10.1016/j.jpainsymman.2019.12.370. Epub ahead of print.

Kochen EM, Jenken F, Boelen PA, Deben LMA, Fahner JC, van den Hoogen A, Teunissen SCCM, Geleijns K, Kars MC. When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories. BMC Palliat Care. 2020 Mar 12;19(1):28. doi: 10.1186/s12904-020-0529-z.

Le Rouzic MA, Claudot F. Characteristics of parental decision-making for children with advanced cancer who are offered enrollment in early-phase clinical trials: A systematic review. Pediatr Hematol Oncol. 2020 May 13:1-30. doi: 10.1080/08880018.2020.1759738. Epub ahead of print.

Malcolm C, Knighting K, Taylor C. Home-based end of life care for children and their families - a systematic scoping review and narrative synthesis. J Pediatr Nurs. 2020 Sep 16;55:126-133. doi: 10.1016/j.pedn.2020.07.018. Epub ahead of print.

Miller KA, Baird J, Lira J, Herrera Eguizabal J, Fei S, Kysh L, Lotstein D. The Use of Telemedicine for Home-Based Palliative Care for Children With Serious Illness: A Scoping Review. J Pain Symptom Manage. 2020 Dec 19:S0885-3924(20)30942-8. doi: 10.1016/j.jpainsymman.2020.12.004. Epub ahead of print.

Ohan JL, Jackson HM, Bay S, Morris JN, Martini A. How psychosocial interventions meet the needs of children of parents with cancer: A review and critical evaluation. Eur J Cancer Care (Engl). 2020 May 13:e13237. doi: 10.1111/ecc.13237. Epub ahead of print.

Oja C, Edbom T, Nager A, Månsson J, Ekblad S. Informing children of their parent's illness: A systematic review of intervention programs with child outcomes in all health care settings globally from inception to 2019. PLoS One. 2020 May 26;15(5):e0233696. doi: 10.1371/journal.pone.0233696.

Polita NB, de Montigny F, Neris RR, Alvarenga WA, Silva-Rodrigues FM, Leite ACAB, Nascimento LC. The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis. J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):444-457. doi: 10.1177/1043454220944059. Epub 2020 Jul 27.

Postavaru GI, Swaby H, Swaby R. A meta-ethnographic study of fathers' experiences of caring for a child with a life-limiting illness. Palliat Med. 2020 Dec 18:269216320979153. doi: 10.1177/0269216320979153. Epub ahead of print.

Ridley A, Frache S. Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review. Palliat Med. 2020 Aug 17:269216320947951. doi: 10.1177/0269216320947951. Epub ahead of print.

Winger A, Kvarme LG, Løyland B, Kristiansen C, Helseth S, Ravn IH. Family experiences with palliative care for children at home: a systematic literature review. BMC Palliat Care. 2020 Oct 24;19(1):165. doi: 10.1186/s12904-020-00672-4.

Wolff SL, Christiansen CF, Nielsen MK, Johnsen SP, Schroeder H, Neergaard MA. Predictors for place of death among children:A systematic review and meta-analyses of recent literature. Eur J Pediatr. 2020 Aug;179(8):1227-1238. doi: 10.1007/s00431-020-03689-2. Epub 2020 Jun 30.

Yamaji N, Suto M, Takemoto Y, Suzuki D, Lopes KDS, Ota E. Supporting the Decision Making of Children With Cancer: A Meta-synthesis. J Pediatr Oncol Nurs. 2020 May 27:1043454220919711. doi: 10.1177/1043454220919711. Epub ahead of print.

2019

Anderson AK, Burke K, Bendle L, Koh M, McCulloch R, Breen M. Artificial nutrition and hydration for children and young people towards end of life: consensus guidelines across four specialist paediatric palliative care centres. BMJ Support Palliat Care. 2019 Oct 19. pii: bmjspcare-2019-001909. doi: 10.1136/bmjspcare-2019-001909. [Epub ahead of print]

Atout M. Experience of nurses who work with children with palliative care needs: A mixed-method systematic review. Palliat Support Care. 2019 Nov 27:1-13. doi: 10.1017/S1478951519000956. [Epub ahead of print]

Bakula DM, Sharkey CM, Perez MN, Espeleta HC, Gamwell KL, Baudino M, Delozier AM, Chaney JM, Matt Alderson R, Mullins LL. The Relationship Between Parent and Child Distress in Pediatric Cancer: A Meta-Analysis. J Pediatr Psychol. 2019 Jul 1. pii: jsz051. doi: 10.1093/jpepsy/jsz051. [Epub ahead of print]

Barker MM, Beresford B, Bland M, Fraser LK. Prevalence and Incidence of Anxiety and Depression Among Children, Adolescents, and Young Adults With Life-Limiting Conditions: A Systematic Review and Meta-analysis. JAMA Pediatr. 2019 Jul 8. doi: 10.1001/jamapediatrics.2019.1712. [Epub ahead of print]

Brimble MJ, Anstey S, Davies J. Long-term nurse-parent relationships in paediatric palliative care: a narrative literature review. Int J Palliat Nurs. 2019 Nov 2;25(11):542-550. doi: 10.12968/ijpn.2019.25.11.542.

Cheng BT, Rost M, De Clercq E, Arnold L, Elger BS, Wangmo T. Palliative care initiation in pediatric oncology patients: A systematic review. Cancer Med. 2019 Jan;8(1):3-12. doi: 10.1002/cam4.1907. Epub 2018 Dec 7.

Cheng L, Liu F, Feng S, Wang Y, Gu Y, Kang Q. Symptom experience of children with cancer younger than 8 years of age: an integrative review. J Pain Symptom Manage. 2019 Apr 10. pii: S0885-3924(19)30167-8. doi: 10.1016/j.jpainsymman.2019.03.021. [Epub ahead of print]

Chong PH, Walshe C, Hughes S. Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review. J Palliat Med. 2019 Jun;22(6):714-723. doi: 10.1089/jpm.2018.0335. Epub 2018 Dec 11.

Constantinou G, Garcia R, Cook E, Randhawa G. Children's unmet palliative care needs: a scoping review of parents' perspectives. BMJ Support Palliat Care. 2019 Jul 19. pii: bmjspcare-2018-001705. doi: 10.1136/bmjspcare-2018-001705. [Epub ahead of print]

Franklin P, Arber A, Reed L, Ream E. Health and social care professionals' experiences of supporting parents and their dependent children during, and following, the death of a parent: A qualitative review and thematic synthesis. Palliat Med. 2019 Jan;33(1):49-65. doi: 10.1177/0269216318803494. Epub 2018 Oct 29.

Friedel M, Aujoulat I, Dubois AC, Degryse JM. Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review. Pediatrics. 2019 Jan;143(1). pii: e20182379. doi: 10.1542/peds.2018-2379. Epub 2018 Dec 7.

Hanna JR, McCaughan E, Semple CJ. Challenges and support needs of parents and children when a parent is at end of life: A systematic review. Palliat Med. 2019 Jun 27:269216319857622. doi: 10.1177/0269216319857622. [Epub ahead of print]

Hauskov Graungaard A, Roested Bendixen C, Haavet OR, Smith-Sivertsen T, Mäkelä M. Somatic symptoms in children who have a parent with cancer: A systematic review. Child Care Health Dev. 2019 Mar;45(2):147-158. doi: 10.1111/cch.12647.

Hua P, Bugeja L, Maple M. A systematic review on the relationship between childhood exposure to external cause parental death, including suicide, on subsequent suicidal behaviour. J Affect Disord. 2019 Oct 1;257:723-734. doi: 10.1016/j.jad.2019.07.082. Epub 2019 Jul 30.

Kim S, Savage TA, Hershberger PE, Kavanaugh K. End-of-Life Care in Neonatal Intensive Care Units from an Asian Perspective: An Integrative Review of the Research Literature. J Palliat Med. 2019 Jan 11. doi: 10.1089/jpm.2018.0304. [Epub ahead of print]

Marcus KL, Santos G, Ciapponi A, Comandé D, Bilodeau M, Wolfe J, Dussel V. Impact of Specialized Pediatric Palliative Care: A Systematic Review. J Pain Symptom Manage. 2019 Aug 9. pii: S0885-3924(19)30449-X. doi: 10.1016/j.jpainsymman.2019.08.005. [Epub ahead of print]

Mu PF, Tseng YM, Wang CC, Chen YJ, Huang SH, Hsu TF, Florczak KL. Nurses’ Experiences in End-of-Life Care in the PICU: A Qualitative Systematic Review. Nurs Sci Q. 2019 Jan;32(1):12-22. doi: 10.1177/0894318418807936.

Negrete TN, Tariman JD. Pediatric Palliative Care: A Literature Review of Best Practices in Oncology Nursing Education Programs. Clin J Oncol Nurs. 2019 Dec 1;23(6):565-568. doi: 10.1188/19.CJON.565-568.

Nilsson S, Ohlen J, Hessman E, Brännström M. Paediatric palliative care: a systematic review. BMJ Support Palliat Care. 2019 Dec 13. pii: bmjspcare-2019-001934. doi: 10.1136/bmjspcare-2019-001934. [Epub ahead of print]

Robert R, Stavinoha P, Jones BL, Robinson J, Larson K, Hicklen R, Smith B, Perko K, Koch K, Findley S, Weaver MS. Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature. Pediatr Blood Cancer. 2019 Apr 29:e27764. doi: 10.1002/pbc.27764. [Epub ahead of print]

Streuli JC, Widger K, Medeiros C, Zuniga-Villanueva G, Trenholm M. Impact of specialized pediatric palliative care programs on communication and decision-making. Patient Educ Couns. 2019 Feb 11. pii: S0738-3991(18)30414-2. doi: 10.1016/j.pec.2019.02.011. [Epub ahead of print]

Thornton R, Nicholson P, Harms L. Scoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn. J Obstet Gynecol Neonatal Nurs. 2019 May;48(3):351-360. doi: 10.1016/j.jogn.2019.02.001. Epub 2019 Apr 1.

Weaver MS, Mooney-Doyle K, Kelly KP, Montgomery K, Newman AR, Fortney CA, Bell CJ, Spruit JL, Kurtz Uveges M, Wiener L, Schmidt CM, Madrigal VN, Hinds PS. The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review. J Palliat Med. 2019 Mar 5. doi: 10.1089/jpm.2018.0483. [Epub ahead of print]

Widger K, Medeiros C, Trenholm M, Zuniga-Villanueva G, Streuli JC. Indicators Used to Assess the Impact of Specialized Pediatric Palliative Care: A Scoping Review. J Palliat Med. 2019 Feb;22(2):199-219. doi: 10.1089/jpm.2018.0420. Epub 2018 Dec 11.

2018

Booth A, Maddison J, Wright K, Fraser L, Beresford B. Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents and all those who care for them: A systematic scoping review. Palliat Med. 2018 Dec;32(10):1552-1566. doi: 10.1177/0269216318800172.

Boyden JY, Curley MAQ, Deatrick JA, Ersek M. Factors Associated With the Use of U.S. Community-Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review. J Pain Symptom Manage. 2018 Jan;55(1):117-131. doi: 10.1016/j.jpainsymman.2017.04.017. Epub 2017 Aug 12.

Cheng L, Wang L, He M, Feng S, Zhu Y, Rodgers C. Perspectives of children, family caregivers, and health professionals about pediatric oncology symptoms: a systematic review. Support Care Cancer. 2018 Sep;26(9):2957-2971. doi: 10.1007/s00520-018-4257-3. Epub 2018 May 17.

Coughtrey A, Millington A, Bennett S, Christie D, Hough R, Su MT, Constantinou MP, Shafran R. The Effectiveness of Psychosocial Interventions for Psychological Outcomes in Pediatric Oncology: A Systematic Review. J Pain Symptom Manage. 2018 Mar;55(3):1004-1017. doi: 10.1016/j.jpainsymman.2017.09.022. Epub 2017 Sep 28.

Dutta O, Tan-Ho G, Choo PY, Ho AHY. Lived experience of a child's chronic illness and death: A qualitative systematic review of the parental bereavement trajectory. Death Stud. 2018 Oct 4:1-15. doi: 10.1080/07481187.2018.1503621. [Epub ahead of print]

Ekberg S, Bradford NK, Herbert A, Danby S, Yates P. Healthcare Users' Experiences of Communicating with Healthcare Professionals About Children Who Have Life-Limiting Conditions: A Qualitative Systematic Review. J Palliat Med. 2018 May 15. doi: 10.1089/jpm.2017.0422. [Epub ahead of print]

Faccio F, Ferrari F, Pravettoni G. When a parent has cancer: How does it impact on children's psychosocial functioning? A systematic review. Eur J Cancer Care (Engl). 2018 Jul 23:e12895. doi: 10.1111/ecc.12895. [Epub ahead of print]

Ghirotto L, Busani E, Salvati M, Di Marco V, Caldarelli V, Artioli G. Researching children's perspectives in pediatric palliative care: A systematic review and meta-summary of qualitative research. Palliat Support Care. 2018 May 29:1-12. doi: 10.1017/S1478951518000172. [Epub ahead of print]

Gibson K, Hofmeyer A, Warland J. Nurses Providing End-of-Life Care for Infants and Their Families in the NICU: A Review of the Literature. Adv Neonatal Care. 2018 Dec;18(6):471-479. doi: 10.1097/ANC.0000000000000533.

Green SB, Markaki A. Interprofessional palliative care education for pediatric oncology clinicians: an evidence-based practice review. BMC Res Notes. 2018 Nov 7;11(1):797. doi: 10.1186/s13104-018-3905-5.

Grimshaw SL, Taylor NF, Mechinaud F, Shields N. Assessment of physical function in children with cancer: A systematic review. Pediatr Blood Cancer. 2018 Aug 9:e27369. doi: 10.1002/pbc.27369. [Epub ahead of print]

Grimston M, Butler AE, Copnell B. Critical care nurses' experiences of caring for a dying child: A qualitative evidence synthesis. J Adv Nurs. 2018 May 5. doi: 10.1111/jan.13701. [Epub ahead of print]

Haines ER, Frost AC, Kane HL, Rokoske FS. Barriers to accessing palliative care for pediatric patients with cancer: A review of the literature. Cancer. 2018 Jun 1;124(11):2278-2288. doi: 10.1002/cncr.31265. Epub 2018 Feb 16.

Huang JY, Monagle P, Massicotte MP, VanderPluym CJ. Antithrombotic therapies in children on durable Ventricular Assist Devices: A literature review. Thromb Res. 2018 Feb 28. pii: S0049-3848(18)30260-3. doi: 10.1016/j.thromres.2018.02.145. [Epub ahead of print]

Kline C, Felton E, Allen IE, Tahir P, Mueller S. Survival outcomes in pediatric recurrent high-grade glioma: results of a 20-year systematic review and meta-analysis. J Neurooncol. 2018 Mar;137(1):103-110. doi: 10.1007/s11060-017-2701-8. Epub 2017 Dec 4.

Marsac ML, Kindler C, Weiss D, Ragsdale L. Let's Talk About It: Supporting Family Communication during End-of-Life Care of Pediatric Patients. J Palliat Med. 2018 Jun;21(6):862-878. doi: 10.1089/jpm.2017.0307. Epub 2018 May 18.

Mazhari F, Shirazi AS, Shabzendehdar M. Management of oral mucositis in pediatric patients receiving cancer therapy: A systematic review and meta-analysis. Pediatr Blood Cancer. 2018 Nov 12:e27403. doi: 10.1002/pbc.27403. [Epub ahead of print]

Namisango E, Bristowe K, Allsop MJ, Murtagh FEM, Abas M, Higginson IJ, Downing J, Harding R. Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes. Patient. 2018 Oct 26. doi: 10.1007/s40271-018-0333-5. [Epub ahead of print]

Nunes MDR, Bomfim E, Olson K, Lopes-Junior LC, Silva-Rodrigues FM, Garcia de Lima RA, Nascimento LC. Interventions minimizing fatigue in children/adolescents with cancer: An integrative review. J Child Health Care. 2018 Jun;22(2):186-204. doi: 10.1177/1367493517752498. Epub 2018 Jan 23.

Nunns M, Mayhew D, Ford T, Rogers M, Curle C, Logan S, Moore D. Effectiveness of non-pharmacological interventions to reduce procedural anxiety in children and adolescents undergoing treatment for cancer: a systematic review and meta-analysis. Psychooncology. 2018 Aug;27(8):1889-1899. doi: 10.1002/pon.4749. Epub 2018 May 22.

Paguinto SG, Kasparian NA, Bray P, Farrar M. Parents' perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review. Disabil Rehabil. 2018 Jun 18:1-8. doi: 10.1080/09638288.2018.1474496. [Epub ahead of print]

Pieper L, Zernikow B, Drake R, Frosch M, Printz M, Wager J. Dyspnea in Children with Life-Threatening and Life-Limiting Complex Chronic Conditions. J Palliat Med. 2018 Apr;21(4):552-564. doi: 10.1089/jpm.2017.0240. Epub 2018 Jan 9.

Pinquart M. Parenting stress in caregivers of children with chronic physical condition—A meta‐analysis. Stress Health. 2018 Apr;34(2):197-207. doi: 10.1002/smi.2780. Epub 2017 Aug 18.

Radossi AL, Taromina K, Marjerrison S, Diorio CJ, Similio R, Njuguna F, Afungchwi GM, Ladas EJ. A systematic review of integrative clinical trials for supportive care in pediatric oncology: a report from the International Society of Pediatric Oncology, T&CM collaborative. Support Care Cancer. 2018 Feb;26(2):375-391. doi: 10.1007/s00520-017-3908-0. Epub 2017 Oct 13.

Santacroce SJ, Tan KR, Killela MK. A systematic scoping review of the recent literature (∼2011-2017) about the costs of illness to parents of children diagnosed with cancer. Eur J Oncol Nurs. 2018 Aug;35:22-32. doi: 10.1016/j.ejon.2018.04.004. Epub 2018 May 17.

Seelisch J, Sung L, Kelly MJ, Raybin JL, Beauchemin M, Dvorak CC, Kelly KP, Nieder ML, Noll RB, Thackray J, Ullrich NJ, Cabral S, Dupuis LL, Robinson PD. Identifying clinical practice guidelines for the supportive care of children with cancer: A report from the Children's Oncology Group. Pediatr Blood Cancer. 2018 Sep 26:e27471. doi: 10.1002/pbc.27471. [Epub ahead of print]

Shakespeare C, Merriel A, Bakhbakhi D, Baneszova R, Barnard K, Lynch M, Storey C, Blencowe H, Boyle F, Flenady V, Gold K, Horey D, Mills T, Siassakos D. Parents’ and healthcare professionals’ experiences of care after stillbirth in low- and middle-income countries: a systematic review and meta-summary. BJOG. 2018 Aug 12. doi: 10.1111/1471-0528.15430. [Epub ahead of print]

Thomas R, Phillips M, Hamilton RJ. Pain Management in the Pediatric Palliative Care Population. J Nurs Scholarsh. 2018 May 5. doi: 10.1111/jnu.12389. [Epub ahead of print]

Sulis G, Amadasi S, Odone A, Penazzato M, Matteelli A. Antiretroviral Therapy in HIV-Infected Children With Tuberculosis: A Systematic Review. Pediatr Infect Dis J. 2018 May;37(5):e117-e125. doi: 10.1097/INF.0000000000001784.

2017

Arruda-Colli MNF, Weaver MS, Wiener L. Communication About Dying, Death, and Bereavement: A Systematic Review of Children's Literature. J Palliat Med. 2017 May;20(5):548-559. Epub 2017 Mar 27.

Hudson BF, Oostendorp LJ, Candy B, Vickerstaff V, Jones L, Lakhanpaul M, Bluebond-Langner M, Stone P. The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review. Palliat Med. 2017 May;31(5):419-436. Epub 2016 Sep 8.

Lazor T, Tigelaar L, Pole JD, De Souza C, Tomlinson D, Sung L. Instruments to measure anxiety in children, adolescents, and young adults with cancer: a systematic review. Support Care Cancer. 2017 Sep;25(9):2921-2931. doi: 10.1007/s00520-017-3743-3. Epub 2017 Jun 3.

Mitchell S, Morris A, Bennett K, Sajid L, Dale J. Specialist paediatric palliative care services: what are the benefits? Arch Dis Child. 2017 Oct;102(10):923-929. doi: 10.1136/archdischild-2016-312026. Epub 2017 Apr 4.

Momani TG, Berry DL. Integrative therapeutic approaches for the management and control of nausea in children undergoing cancer treatment: A systematic review of literature. J Pediatr Oncol Nurs. 2017 May/Jun;34(3):173-184. doi: 10.1177/1043454216688638. Epub 2017 Feb 13.

Popejoy E, Pollock K, Almack K, Manning JC, Johnston B. Decision-making and future planning for children with life-limiting conditions: A qualitative systematic review and thematic synthesis. Child Care Health Dev. 2017 Sep;43(5):627-644. doi: 10.1111/cch.12461. Epub 2017 Apr 12.

Radossi AL, Taromina K, Marjerrison S, Diorio CJ, Similio R, Njuguna F, Afungchwi GM, Ladas EJ. A systematic review of integrative clinical trials for supportive care in pediatric oncology: a report from the International Society of Pediatric Oncology, T&CM collaborative. Support Care Cancer. 2017 Oct 13. doi: 10.1007/s00520-017-3908-0. [Epub ahead of print]

Rodríguez-Mansilla J, González-Sánchez B, Torres-Piles S, Martín JG, Jiménez-Palomares M, Bellino MN. Effects of the application of therapeutic massage in children with cancer: a systematic review. Rev Lat Am Enfermagem. 2017 Jun 8;25:e2903. doi: 10.1590/1518-8345.1774.2903.

Rost M, De Clercq E, Wangmo T, Elger B. The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines. J Hosp Palliat Nurs. 2017 Dec;19(6):556-64.

Sasaki H, Bouesseau MC, Marston J, Mori R. A scoping review of palliative care for children in low- and middle-income countries. BMC Palliat Care. 2017 Nov 25;16(1):60. doi: 10.1186/s12904-017-0242-8.

Tanco K, Park JC, Cerana A, Sisson A, Sobti N, Bruera E. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients. Palliat Support Care. 2017 Feb;15(1):110-124. Epub 2016 Mar 29.

Tomlinson D, Tigelaar L, Hyslop S, Lazor T, Dupuis LL, Griener K, Oliveria J, Sung L. Self-report of symptoms in children with cancer younger than 8 years of age: a systematic review. Support Care Cancer. 2017 Aug;25(8):2663-2670. Epub 2017 May 12.

2016

Coombes LH, Wiseman T, Lucas G, Sangha A, Murtagh FE. Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use. Palliat Med. 2016 Dec;30(10):935-949. Epub 2016 May 31.

Graham D, Tisdall MM, Gill D. Corpus callosotomy outcomes in pediatric patients: A systematic review. Epilepsia. 2016 Jul;57(7):1053-68. Epub 2016 May 29.

Hillis R, Ling J, Quinn C, Brenner M. Evaluating a pilot paediatric hospice-at-home service: a literature review. Int J Palliat Nurs. 2016 Feb;22(2):90-7.

McConnell T, Scott D, Porter S. Healthcare staff 's experience in providing end-of-life care to children: A mixed-method review. Palliat Med. 2016 Dec;30(10):905-919. Epub 2016 Apr 29.

Montgomery K, Sawin KJ, Hendricks-Ferguson VL. Experiences of Pediatric Oncology Patients and Their Parents at End of Life: A Systematic Review. J Pediatr Oncol Nurs. 2016 Mar;33(2):85-104. Epub 2015 Jul 27.

Johnston DL, Sung L, Stark D, Frazier AL, Rosenberg AR. A systematic review of patient-reported outcome measures of neuropathy in children, adolescents and young adults. Support Care Cancer. 2016 Sep;24(9):3723-8. doi: 10.1007/s00520-016-3199-x. Epub 2016 Apr 1.

Schiessl C. Gottschling S. Gronwald BM. What are Palliative Care Physicians for Adults Taught on Palliative Care for Children? Paediatric Aspects in Palliative Care Curricula for Adults. Klin Padiatr. 2016 Jan;228(1):35-41. doi: 10.1055/s-0035-1569266. Epub 2016 Jan 14.

Tomlinson D, Zupanec S, Jones H, O'Sullivan C, Hesser T, Sung L. The lived experience of fatigue in children and adolescents with cancer: a systematic review. Support Care Cancer. 2016 Aug;24(8):3623-31. Epub 2016 May 5.

Weaver MS, Heinze KE, Bell CJ, Wiener L, Garee AM, Kelly KP, Casey RL, Watson A, Hinds PS; Pediatric Palliative Care Special Interest Group at Children’s National Health System. Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review. Palliat Med. 2016 Mar;30(3):212-23. Epub 2015 Apr 28.

Zaal-Schuller IH, de Vos MA, Ewals FV, van Goudoever JB, Willems DL. End-of-life decision-making for children with severe developmental disabilities: The parental perspective. Res Dev Disabil.2016 Feb-Mar;49-50:235-46.Epub 2015 Dec 29.

2015

Beecham E, Candy B, Howard R, McCulloch R, Laddie J, Rees H, Vickerstaff V, Bluebond-Langner M, Jones L. Pharmacological interventions for pain in children and adolescents with life-limiting conditions. Cochrane Database Syst Rev. 2015 Mar 13;3:CD010750.

Butler AE, Hall H, Willetts G, Copnell B. Family Experience and PICU Death: A Meta-Synthesis. Pediatrics. 2015 Oct;136(4):e961-73. Epub 2015 Sep 14.

Donovan LA, Wakefield CE, Russell V, Cohn RJ. Hospital-based bereavement services following the death of a child: a mixed study review. Palliat Med. 2015 Mar;29(3):193-210.Epub 2014 Nov 13.

Gerhardt CA, Lehmann V, Long KA, Alderfer MA. Supporting Siblings as a Standard of Care in Pediatric Oncology. Pediatr Blood Cancer. 2015 Dec;62 Suppl 5:S750-804.

Howes C. Caring until the end: a systematic literature review exploring Paediatric Intensive Care Unit end-of-life care. Nurs Crit Care. 2015 Jan;20(1):41-51.

Knops RR, Kremer LC, Verhagen AA; Dutch Paediatric Palliative Care Guideline Group for Symptoms. Paediatric palliative care: recommendations for treatment of symptoms in the Netherlands. BMC Palliat Care. 2015 Nov 5;14:57.

Virdun C, Brown N, Phillips J, Luckett T, Agar M, Green A, Davidson PM. Elements of optimal paediatric palliative care for children and young people: An integrative review using a systematic approach. Collegian. 2015;22(4):421-31.

Weaver MS, Heinze KE, Kelly KP, Wiener L, Casey RL, Bell CJ, Wolfe J, Garee AM, Watson A, Hinds PS. Palliative Care as a Standard of Care in Pediatric Oncology. Pediatr Blood Cancer. 2015 Dec;62 Suppl.

Williams-Reade J, Lamson AL, Knight SM, White MB, Ballard SM, Desai PP. Paediatric palliative care: a review of needs, obstacles and the future. J Nurs Manag. 2015 Jan;23(1):4-14. Epub 2013 Aug 14.

2014

Coad J, Patel R, Murray S. Disclosing terminal diagnosis to children and their families: palliative professionals' communication barriers. Death Stud. 2014 May-Jun;38(5):302-7.Epub 2013 Sep 17.

Harding R, Albertyn R, Sherr L, Gwyther L. Pediatric palliative care in sub-saharan Africa: a systematic review of the evidence for care models, interventions, and outcomes. J Pain Symptom Manage. 2014 Mar;47(3):642-51. Epub 2013 Aug 21.

Melin-Johansson C, Axelsson I, Jonsson Grundberg M, Hallqvist F. When a child dies: parents' experiences of palliative care-an integrative literature review. J Pediatr Nurs. 2014 Nov-Dec;29(6):660-9. doi: 10.1016/j.pedn.2014.06.009. Epub 2014 Jun 26.

Petersen CL. Spiritual care of the child with cancer at the end of life: a concept analysis. Journal of Advanced Nursing. 70(6):1243-53, 2014 Jun.

Robb SL, Hanson-Abromeit D. A review of supportive care interventions to manage distress in young children with cancer and parents. Cancer Nurs. 2014 Jul-Aug;37(4):E1-26.

Valdez-Martinez E, Noyes J, Bedolla M. When to stop? Decision-making when children's cancer treatment is no longer curative: a mixed-method systematic review. BMC Pediatr. 2014 May 13;14:124.

2013

Bluebond-Langner M, Beecham E, Candy B, Langner R, Jones L. Preferred place of death for children and young people with life-limiting and life-threatening conditions: A systematic review of the literature and recommendations for future inquiry and policy. Palliat Med. 2013 Sep;27(8):705-13. Epub 2013 Apr 23.

Lotz JD, Jox RJ, Borasio GD, Führer M. Pediatric advance care planning: a systematic review. Pediatrics. 2013 Mar;131(3):e873-80. Epub 2013 Feb 11.

Lima NN, do Nascimento VB, de Carvalho SM, Neto ML, Moreira MM, Brasil AQ, Junior FT, de Oliveira GF, Reis AO. Spirituality in childhood cancer care. Neuropsychiatr Dis Treat. 2013;9:1539-1544. Epub 2013 Oct 9.

Rork JF, Berde CB, Goldstein RD. Regional anesthesia approaches to pain management in pediatric palliative care: a review of current knowledge. J Pain Symptom Manage. 2013 Dec;46(6):859-73. Epub 2013 Mar 29.

Stevenson M, Achille M, Lugasi T. Pediatric palliative care in Canada and the United States: a qualitative metasummary of the needs of patients and families. J Palliat Med. 2013 May;16(5):566-77. Epub 2013 Apr 4.

Tomlinson D, Hinds PS, Ethier MC, Ness KK, Zupanec S, Sung L. Psychometric properties of instruments used to measure fatigue in children and adolescents with cancer: a systematic review. J Pain Symptom Manage. 2013 Jan;45(1):83-91.Epub 2012 Aug 11.

Wang J, Kearney JA. The experience of Chinese American parents of children with life-limiting illness: a comprehensive review. Int J Palliat Nurs. 2013 Jul;19(7):347-54.

2012

Aschenbrenner AP, Winters JM, Belknap RA. Integrative review: parent perspectives on care of their child at the end of life. J Pediatr Nurs. 2012 Oct;27(5):514-22. doi: 10.1016/j.pedn.2011.07.008. Epub 2011 Sep 13.

Heinze KE, Nolan MT. Parental decision making for children with cancer at the end of life: a meta-ethnography. J Pediatr Oncol Nurs. 2012 Nov-Dec;29(6):337-45. Epub 2012 Sep 19.

Hinds PS, Menard JC, Jacobs SS. The child's voice in pediatric palliative and end-of-life care. Prog Pall Care. 2012;20(6):337-42.

Kelly M, Jones S, Wilson V, Lewis P. How children's rights are constructed in family-centred care: a review of the literature. J Child Health Care. 2012 Jun;16(2):190-205. Epub 2012 Feb 22.

Manji A, Beyene J, Dupuis LL, Phillips R, Lehrnbecher T, Sung L. Outpatient and oral antibiotic management of low-risk febrile neutropenia are effective in children--a systematic review of prospective trials. Support Care Cancer. 2012 Jun;20(6):1135-45.Epub 2012 Mar 9.

Rosenberg AR, Baker KS, Syrjala K, Wolfe J. Systematic review of psychosocial morbidities among bereaved parents of children with cancer. Pediatr Blood Cancer. 2012 Apr;58(4):503-12. doi: 10.1002/pbc.23386. Epub 2011 Oct 28.

Stayer D. Pediatric palliative care: a conceptual analysis for pediatric nursing practice. J Pediatr Nurs. 2012 Aug;27(4):350-6. Epub 2011 Jul 13.

2011

Creten C, Van Der Zwaan S, Blankespoor RJ, Leroy PL, Schieveld JN. Pediatric delirium in the pediatric intensive care unit: a systematic review and an update on key issues and research questions. Minerva Anestesiol. 2011 Nov;77(11):1099-107. Epub 2011 May 26.

Doug M, Adi Y, Williams J, Paul M, Kelly D, Petchey R, Carter YH. Transition to adult services for children and young people with palliative care needs: a systematic review. Arch Dis Child. 2011 Jan;96(1):78-84. Epub 2009 Nov 30.

Fayed N, Schiariti V, Bostan C, Cieza A, Klassen A. Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions. Qual Life Res. 2011 Oct;20(8):1247-58. Epub 2011 Feb 4.

Klassen AF, Anthony SJ, Khan A, Sung L, Klaassen R. Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review. Support Care Cancer. 2011 Sep;19(9):1275-87. Epub 2011 May 25.

Knapp C, Woodworth L, Wright M, Downing J, Drake R, Fowler-Kerry S, Hain R, Marston J. Pediatric palliative care provision around the world: A systematic review. Pediatr Blood Cancer. 2011 Mar 17. doi: 10.1002/pbc.23100. [Epub ahead of print]

Kumar SP. Reporting of pediatric palliative care: a systematic review and quantitative analysis of research publications in palliative care journals. Indian J Palliat Care. 2011 Sep;17(3):202-9.

Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review. Clin Child Fam Psychol Rev. 2011 Mar;14(1):57-88.

Meert KL, Schim SM, Briller SH. Parental bereavement needs in the pediatric intensive care unit: review of available measures. J Palliat Med. 2011 Aug;14(8):951-64. Epub 2011 Jun 1.

2010

Alderfer MA, Long KA, Lown EA, Marsland AL, Ostrowski NL, Hock JM, Ewing LJ. Psychosocial adjustment of siblings of children with cancer: a systematic review. Psychooncology. 2010 Aug;19(8):789-805.

Bishop FL, Prescott P, Chan YK, Saville J, von Elm E, Lewith GT. Prevalence of complementary medicine use in pediatric cancer: a systematic review. Pediatrics. 2010 Apr;125(4):768-76. Epub 2010 Mar 22.

Eden LM, Callister LC. Parent involvement in end-of-life care and decision making in the newborn intensive care unit: an integrative review. J Perinat Educ. 2010 Winter;19(1):29-39.

Hatherill S, Flisher AJ. Delirium in children and adolescents: a systematic review of the literature. J Psychosom Res. 2010 Apr;68(4):337-44. Epub 2010 Jan 12.

Jones BL, Pelletier W, Decker C, Barczyk A, Dungan SS. Fathers of children with cancer: a descriptive synthesis of the literature. Soc Work Health Care. 2010 May;49(5):458-93.

Macdonald ME, Chilibeck G, Affleck W, Cadell S. Gender imbalance in pediatric palliative care research samples. Palliat Med. 2010 Jun;24(4):435-44. Epub 2009 Dec 16.

Shepherd E, Woodgate RL, Sawatzky JA. Pain in children with central nervous system cancer: a review of the literature. Oncol Nurs Forum. 2010 Jul;37(4):E318-30.

Tomlinson D, von Baeyer CL, Stinson JN, Sung L. A systematic review of faces scales for the self-report of pain intensity in children. Pediatrics. 2010 Nov;126(5):e1168-98. Epub 2010 Oct 4.

Ungureanu I, Sandberg JG. "Broken together": Spirituality and religion as coping strategies for couples dealing with the death of a child: A literature review with clinical implications. Contemp Fam Ther. 2010 Sep;32(3):302-19.

2009

Bishop K, Mele N, Koppmann MJ, Day S. A review of paediatric palliative care nursing education in Latin America. Int J Palliat Nurs. 2009 Aug;15(8):377-82.

Hendrickson KC. Morbidity, mortality, and parental grief: A review of the literature on the relationship between the death of a child and the subsequent health of parents. Palliat Support Care. 2009 Mar;7(1):109-119.

Prchal A, Landolt MA. Psychological interventions with siblings of pediatric cancer patients: a systematic review. Psychooncology. 2009 Dec;18(12):1241-51.

Ruland CM, Hamilton GA, Schjødt-Osmo B. The complexity of symptoms and problems experienced in children with cancer: a review of the literature. J Pain Symptom Manage. 2009 Mar;37(3):403-18.

Seitz DC, Besier T, Goldbeck L. Psychosocial interventions for adolescent cancer patients: a systematic review of the literature. Psychooncology. 2009 Jul;18(7):683-90.

Widger K, Steele R, Oberle K, Davies B. Exploring the Supportive Care Model as a framework for pediatric palliative care. J Hosp Palliat Nurs. 2009 Jul-Aug;11(4):209-16.

Zander M, Hutton A. Paediatric oncology nursing: working and coping when kids have cancer - a thematic review. Neonatal Paediatr Child Health Nurs. 2009 Nov;12(3):15-27. No Abstract Available.

2008

Cameron J, Taylor J, Greene A. Evaluating professional guidelines for the care of dying previable infants. Evid Base Midwifery. 2008 Dec;6(4):136-142. No Abstract Available.

Ens CD, Chochinov HM, Bérard JL, Harlos MS, Stenekes SJ, Wowchuk SM. Pediatric palliative care online: the views of health care professionals. J Palliat Care. 2008 Spring;24(1):41-8.

Foster TL, Gilmer MJ. Continuing bonds: a human response within paediatric palliative care. Int J Palliat Nurs. 2008 Feb;14(2):85-91.

Harvey S, Snowdon C, Elbourne D. Effectiveness of bereavement interventions in neonatal intensive care: a review of the evidence. Semin Fetal Neonatal Med. 2008 Oct;13(5):341-56. Epub 2008 Jun 2.

Hughes D, Ladas E, Rooney D, Kelly K. Massage therapy as a supportive care intervention for children with cancer. Oncol Nurs Forum. 2008 May;35(3):431-42.

Jackson C, Cheater FM, Reid I. A systematic review of decision support needs of parents making child health decisions. Health Expect. 2008 Sep;11(3):232-51.

Linton JM, Feudtner C. What accounts for differences or disparities in pediatric palliative and end-of-life care? a systematic review focusing on possible multilevel mechanisms. Pediatrics. 2008 Sep;122(3):574-82.

Moore P, Kerridge I, Gillis J, Jacobe S, Isaacs D. Withdrawal and limitation of life-sustaining treatments in a paediatric intensive care unit and review of the literature. J Paediatr Child Health. 2008 Jul-Aug;44(7-8):404-8.

Phillips RS, Gibson F. A systematic review of treatments for constipation in children and young adults undergoing cancer treatment. J Pediatr Hematol Oncol. 2008 Nov;30(11):829-30.

Vrijmoet-Wiersma CM, van Klink JM, Kolk AM, Koopman HM, Ball LM, Maarten Egeler R. Assessment of parental psychological stress in pediatric cancer: a review. J Pediatr Psychol. 2008 Aug;33(7):694-706.

2007

Dingeman RS, Mitchell EA, Meyer EC, Curley MA. Parent presence during complex invasive procedures and cardiopulmonary resuscitation: a systematic review of the literature. Pediatrics. 2007 Oct;120(4):842-54.

Eddy L, Cruz M. The relationship between fatigue and quality of life in children with chronic health problems: a systematic review. J Spec Pediatr Nurs. 2007 Apr;12(2):105-14. 

Klassen A, Raina P, Reineking S, Dix D, Pritchard S, O’Donnell M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being. Support Care Cancer. 2007 Jul;15(7):807-18.

Rheingans JI. A systematic review of nonpharmacologic adjunctive therapies for symptom management in children with cancer. J Pediatr Oncol Nurs. 2007 Mar-Apr;24(2):81-94.

Tomlinson D, Bartels U, Hendershot E, Constantin J, Wrathall G, Sung L. Challenges to participation in paediatric palliative care research : a review of the literature. Palliat Med. 2007 Jul;21(5):435-40. 

Zernikow B, Michel E, Anderson B. Transdermal fentanyl in childhood and adolescence: a comprehensive literature review. J Pain. 2007 Mar;8(3):187-207.

2006

Moro T, Kavanaugh K, Okuno-Jones S, Vankleef JA. Neonatal end-of-life care: a review of the research literature. J Perinat Neonatal Nurs. 2006 Jul-Sep;20(3):262-73.

Richardson J, Smith JE, McCall G, Pilkington K. Hypnosis for procedure-related pain and distress in pediatric cancer patients: a systematic review of effectiveness and methodology related to hypnosis interventions. J Pain & Symptom Manage. 2006 Jan;31(1):70-84.

2004

Davies R. New understandings of parental grief: literature review. J Adv Nurs. 2004 Jun;46(5):506-13.

National Palliative Care Program. Paediatric palliative care service model review [final report]. Canberra ACT. Australian Government Department of Health and Ageing. 2004 Jan:152pp.

Torreao LA, Pereira C, Troster E. Ethical aspects in the management of the terminally ill patient in the pediatric intensive care unit. Rev Hosp Clin Fac Med Sao Paulo. 2004 Jan;59(1):3-9. Epub 2004 Mar 15.

Wild MR, Espie CA. The efficacy of hypnosis in the reduction of procedural pain and distress in pediatric oncology: a systematic review. J Dev Behav Pediatr. 2004 Jun;25(3):207-13.

2000

Cooley C, Adeodu S, Aldred H, Beesley S, Leung A, Thacker L. Paediatric palliative care: a lack of research-based evidence. Int J Palliat Nurs. 2000 Jul-Aug;6(7):346-51.

Masri C, Farrell CA, Lacroix J, Rocker G, Shemie SD. Decision making and end-of-life care in critically ill children. J Palliat Care. 2000 Oct;16 Suppl:S45-52.